Abstract
Quality of life is both a multidimensional concept and the essential objective of paediatric palliative care. The MOSAIK study, whose acronym stands for Move to Open Shared Advanced Interventions for Kids with Life-Limiting Conditions, focused on the development of a family-centred outcomes measure for assessing quality of life in children and their parents. The field-study used mixed methods and a strong collaborative approach that involved all stakeholders. How can nursing education curricula best implement the options for maximizing higher QoL in nursing students? And which specific competencies gained from clinical work and research in paediatric palliative care can be transferred to nursing students but also to ordinary life?
Biography
Prof. Dr Marie Friedel has served as a full professor at the University of Luxembourg since November 2022. She is the Director of two Bachelor’s programmes in nursing sciences: one in paediatric nursing, the other in mental health. Her mandate, which she shares with her colleague Prof. Dr Laurence Bernard and their team, is to create and implement new Bachelor’s degrees and research programmes in nursing science. Trained as a paediatric nurse, she holds an inter-university degree in paediatric palliative care (Université Claude Bernard, France), and a Master and PhD in Public Health (Université catholique de Louvain, Belgium). For 20 years before joining the University of Luxembourg, she was a lecturer at the Nursing and Midwifery Department at the Haute Ecole Léonard de Vinci in Brussels. She is also a scientific collaborator at the Institute of Health and Society (UCLouvain, Belgium) and a regular invited lecturer at the Université catholique de Lille (France). As a peer reviewer in several scientific journals in paediatric palliative care, she has extended national and international collaboration in her research field. Marie loves building bridges between people, disciplines, and countries.