Research project MyPD

MyPD study structure

The MyPD study is divided into three parts and participants can choose which they wish to take part in:

Step 1: online survey

The first step is a 30-minute online survey, available in English, French and German, that you can complete from the comfort of your home. We kindly invite you to participate if you are:

  • A person living with Parkinson’s disease
  • An informal caregiver of a person with Parkinson’s (e.g. family member, partner or friend who supports this person in daily life)

After completing the online survey, you can indicate if you would like to continue in future phases of the study and join face-to-face interviews and/or group workshops. Based on the online survey answers, the study team will contact a subset of the participants who responded positively to invite them for interviews and workshops.

If you need any help in completing the survey, you can contact the study team (+352 621 519 122, mypd@uni.lu) who will gladly assist you.

Step 2: Face-to-face interviews

A face-to-face interview takes approximately 1 hour. We will further explore your experience with Parkinson’s disease (for informal caregivers – your experience of supporting a person with Parkinson’s) and how technology could help you.

Step 3: Group workshops

Group workshops take approximately 2 hours (including breaks). You will meet other members of the Parkinson’s community and jointly with the research team create an eDiary application.

Several workshops will be organised in English, French and German. The location, date and language of each workshop will be advertised in advance, and you will be able to choose your session based on your language preference and availability. These interactive hands-on sessions will allow you to interact directly with the research team and learn more about how technology is created. No previous experience with technology development is needed.

For this step of the study, we are also inviting healthcare professionals working with people with Parkinson’s (e.g. neurologists, nurses, therapists etc.).

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