{"id":861,"date":"2024-04-23T15:19:05","date_gmt":"2024-04-23T13:19:05","guid":{"rendered":"https:\/\/www.uni.lu\/lcsb-fr\/?post_type=research-projects&#038;p=861"},"modified":"2024-04-23T16:38:03","modified_gmt":"2024-04-23T14:38:03","slug":"a-propos","status":"publish","type":"research-projects","link":"https:\/\/www.uni.lu\/lcsb-fr\/research-projects\/etude-mypd\/a-propos\/","title":{"rendered":"Structure de l&rsquo;\u00e9tude\u00a0\u00ab\u00a0MyPD\u00a0\u00bb"},"content":{"rendered":"<div class=\"section py-0 static\">\n<section class=\"py-0 wp-block-unilux-blocks-free-section section\"><div class=\"container xl:max-w-screen-xl\"><!-- SecondaryNavigationMirror --><div class=\"js-secondary-nav--sticky wp-block-unilux-blocks-secondary-navigation\" id=\"e91ded91-e8d3-4aa6-88a7-450ddb6d038f\">\n    <nav id=\"secondary-navigation\" role=\"navigation\" aria-label=\"Secondary menu\" class=\"secondary-nav\">\n        <button class=\"secondary-nav__button btn btn-solid--primary w-full\" aria-expanded=\"false\" aria-controls=\"secondary-navigation__list\" title=\"The selected page is \u00c0 propos\" type=\"button\">\n            <span class=\"btn__name mr-auto\">\u00c0 propos<\/span>\n            <svg aria-hidden=\"true\" focusable=\"false\" class=\"icon icon-outline icon--xs\">\n                <use xlink:href=\"https:\/\/www.uni.lu\/wp-content\/themes\/unilux-theme\/assets\/images\/icons\/icons-outline.svg#icon--arrow-down\" \/>\n            <\/svg>\n        <\/button>\n\n        <ul id=\"secondary-navigation__list\" class=\"secondary-nav__list\">\n            <li class=\"secondary-nav__item\">\n    <a href=\"https:\/\/www.uni.lu\/lcsb-fr\/research-projects\/etude-mypd\/\" target=\"\" rel=\"noreferrer noopener\" class=\"secondary-nav__link \">\n        <svg aria-hidden=\"true\" focusable=\"false\" class=\"icon icon-outline icon--xs\">\n            <use xlink:href=\"https:\/\/www.uni.lu\/wp-content\/themes\/unilux-theme\/assets\/images\/icons\/icons-outline.svg#icon--arrow-right\" \/>\n        <\/svg>\n        <span class=\"secondary-nav__name\">Accueil<\/span>\n    <\/a>\n<\/li>\n<li class=\"secondary-nav__item\">\n    <a href=\"https:\/\/www.uni.lu\/lcsb-fr\/research-projects\/etude-mypd\/a-propos\/\" target=\"\" rel=\"noreferrer noopener\" class=\"secondary-nav__link isactived\" aria-current=\"page\">\n        <svg aria-hidden=\"true\" focusable=\"false\" class=\"icon icon-outline icon--xs\">\n            <use xlink:href=\"https:\/\/www.uni.lu\/wp-content\/themes\/unilux-theme\/assets\/images\/icons\/icons-outline.svg#icon--arrow-right\" \/>\n        <\/svg>\n        <span class=\"secondary-nav__name\">\u00c0 propos<\/span>\n    <\/a>\n<\/li>\n<li class=\"secondary-nav__item\">\n    <a href=\"https:\/\/www.uni.lu\/lcsb-fr\/research-projects\/etude-mypd\/vivre-avec-parkinson\/\" target=\"\" rel=\"noreferrer noopener\" class=\"secondary-nav__link \">\n        <svg aria-hidden=\"true\" focusable=\"false\" class=\"icon icon-outline icon--xs\">\n            <use xlink:href=\"https:\/\/www.uni.lu\/wp-content\/themes\/unilux-theme\/assets\/images\/icons\/icons-outline.svg#icon--arrow-right\" \/>\n        <\/svg>\n        <span class=\"secondary-nav__name\">Patient<\/span>\n    <\/a>\n<\/li>\n<li class=\"secondary-nav__item\">\n    <a href=\"https:\/\/www.uni.lu\/lcsb-fr\/research-projects\/etude-mypd\/aidant-informel\/\" target=\"\" rel=\"noreferrer noopener\" class=\"secondary-nav__link \">\n        <svg aria-hidden=\"true\" focusable=\"false\" class=\"icon icon-outline icon--xs\">\n            <use xlink:href=\"https:\/\/www.uni.lu\/wp-content\/themes\/unilux-theme\/assets\/images\/icons\/icons-outline.svg#icon--arrow-right\" \/>\n        <\/svg>\n        <span class=\"secondary-nav__name\">Aidant informel<\/span>\n    <\/a>\n<\/li>\n<li class=\"secondary-nav__item\">\n    <a href=\"https:\/\/www.uni.lu\/lcsb-fr\/research-projects\/etude-mypd\/contact\/\" target=\"\" rel=\"noreferrer noopener\" class=\"secondary-nav__link \">\n        <svg aria-hidden=\"true\" focusable=\"false\" class=\"icon icon-outline icon--xs\">\n            <use xlink:href=\"https:\/\/www.uni.lu\/wp-content\/themes\/unilux-theme\/assets\/images\/icons\/icons-outline.svg#icon--arrow-right\" \/>\n        <\/svg>\n        <span class=\"secondary-nav__name\">Contact<\/span>\n    <\/a>\n<\/li>\n        <\/ul>\n    <\/nav>\n<\/div>\n<!-- end SecondaryNavigationMirror --><\/div><\/section>\n\n\n\n<section class=\"wp-block-unilux-blocks-free-section section\"><div class=\"container xl:max-w-screen-xl\">\n<h2 class=\"has-text-align-left wp-block-unilux-blocks-heading\"        id=\"structure-de-letude-mypd\"\n    >\nStructure de l&rsquo;\u00e9tude\u00a0\u00ab\u00a0MyPD\u00a0\u00bb<\/h2>\n\n\n\n<p>L&rsquo;\u00e9tude \u00ab&nbsp;MyPD&nbsp;\u00bb est divis\u00e9e en trois parties et les participants peuvent choisir auxquelles ils souhaitent prendre part&nbsp;:<\/p>\n\n\n\n<h3 class=\"has-text-align-left wp-block-unilux-blocks-heading\"        id=\"etape-1-lenquete-en-ligne\"\n    >\n<strong><strong>\u00c9tape 1 : l\u2019enqu\u00eate en ligne<\/strong><\/strong><\/h3>\n\n\n\n<p>La premi\u00e8re \u00e9tape est une enqu\u00eate en ligne de 30 minutes, disponible en anglais, fran\u00e7ais et allemand, \u00e0 laquelle vous pouvez r\u00e9pondre depuis chez vous. Nous vous invitons \u00e0 compl\u00e9ter ce questionnaire si vous \u00eates&nbsp;:<\/p>\n\n\n\n<ul class=\"ulux-list\">\n<li class=\"ulux-list-item\">une personne atteinte de la maladie de Parkinson<\/li>\n\n\n\n<li class=\"ulux-list-item\">un proche aidant une personne atteinte de la maladie de Parkinson (un membre de la famille, un partenaire ou un ami qui soutient cette personne dans sa vie quotidienne).<\/li>\n<\/ul>\n\n\n\n<p>\u00c0 la fin de cette enqu\u00eate en ligne, vous pourrez indiquer si vous souhaitez participer aux \u00e9tapes suivantes&nbsp;: un entretien en personne et\/ou un atelier de groupe.<\/p>\n\n\n\n<p>En se basant sur les r\u00e9ponses au questionnaire, l&rsquo;\u00e9quipe de l&rsquo;\u00e9tude recontactera une partie des participants ayant r\u00e9pondu positivement pour les inviter \u00e0 un entretien ou un atelier de groupe selon leur choix.<\/p>\n\n\n\n<p>Si vous avez besoin d&rsquo;aide pour compl\u00e9ter le questionnaire en ligne, vous pouvez contacter l&rsquo;\u00e9quipe de l&rsquo;\u00e9tude (+352 621 519 122, mypd@uni.lu) qui se fera un plaisir de vous aider.<\/p>\n\n\n\n<h3 class=\"has-text-align-left wp-block-unilux-blocks-heading\"        id=\"etape-2-entretiens-en-personne\"\n    >\n<strong>\u00c9tape 2 : Entretiens en personne<\/strong><\/h3>\n\n\n\n<p>Chaque entretien dure environ une heure et permet de parler plus en d\u00e9tails de votre exp\u00e9rience de la maladie, que ce soit en tant que patient ou en tant qu\u2019aidant, et de la mani\u00e8re dont les nouvelles technologies pourraient vous aider.<\/p>\n\n\n\n<h3 class=\"has-text-align-left wp-block-unilux-blocks-heading\"        id=\"etape-3-ateliers-de-groupe\"\n    >\n<strong><strong>\u00c9tape 3 : Ateliers de groupe<\/strong><\/strong><\/h3>\n\n\n\n<p>Les ateliers de groupe durent environ 2 heures (pauses comprises). Au cours d\u2019un atelier, vous rencontrerez d&rsquo;autres membres de la communaut\u00e9 constitu\u00e9e par les patients, leurs proches et les soignants et, en compagnie de l&rsquo;\u00e9quipe de l\u2019\u00e9tude, vous pourrez participer activement \u00e0 la cr\u00e9ation d\u2019une application eDiary.<\/p>\n\n\n\n<p>Plusieurs ateliers seront organis\u00e9s en anglais, en fran\u00e7ais et en allemand. Le lieu, la date et la langue de chaque atelier seront annonc\u00e9s \u00e0 l&rsquo;avance, ce qui vous permettra de choisir celui auquel vous souhaitez participer, en fonction de votre pr\u00e9f\u00e9rence linguistique et de votre disponibilit\u00e9.<\/p>\n\n\n\n<p>Ces ateliers pratiques et interactifs vous permettront d&rsquo;interagir directement avec les chercheurs et d&rsquo;en apprendre davantage sur la mani\u00e8re dont ce type d\u2019application est cr\u00e9\u00e9. Aucune exp\u00e9rience pr\u00e9alable en mati\u00e8re de d\u00e9veloppement technologique n&rsquo;est n\u00e9cessaire.<\/p>\n\n\n\n<p>Pour cette \u00e9tape de l&rsquo;\u00e9tude, les professionnels de sant\u00e9 travaillant avec des personnes atteintes de la maladie de Parkinson (neurologues, infirmi\u00e8res, th\u00e9rapeutes, etc.) seront \u00e9galement invit\u00e9s.<\/p>\n<\/div><\/section>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":56,"featured_media":0,"parent":853,"menu_order":0,"template":"","meta":{"featured_image_focal_point":[],"show_featured_caption":false,"ulux_newsletter_groups":"","uluxPostTitle":"","uluxPrePostTitle":"","_trash_the_other_posts":false,"_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"rpp_rp_identifier":"848","rpp_taxonomies_in_sync":true},"research-project-status":[595],"research-project-type":[],"field-of-interest":[280,289],"organisation":[535,525],"authorship":[56],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v22.3 (Yoast SEO v22.3) - 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