{"id":1766,"date":"2026-01-13T12:53:25","date_gmt":"2026-01-13T11:53:25","guid":{"rendered":"https:\/\/www.uni.lu\/lcsb-fr\/?post_type=research-projects&p=1766"},"modified":"2026-01-13T13:17:44","modified_gmt":"2026-01-13T12:17:44","slug":"dmdempower","status":"publish","type":"research-projects","link":"https:\/\/www.uni.lu\/lcsb-fr\/research-projects\/dmdempower\/","title":{"rendered":"DMDEmpower : comprendre le r\u00f4le de la sant\u00e9 num\u00e9rique dans l\u2019autonomie des personnes atteintes de la maladie de Parkinson"},"content":{"rendered":"
\n
\n
\n \n \n \u00c0 propos<\/span>\n \n \n <\/svg>\n <\/button>\n\n
    \n
  • \n \n \n \n <\/svg>\n \u00c0 propos<\/span>\n <\/a>\n<\/li>\n
  • \n \n \n \n <\/svg>\n Participation<\/span>\n <\/a>\n<\/li>\n
  • \n \n \n \n <\/svg>\n Contact<\/span>\n <\/a>\n<\/li>\n <\/ul>\n <\/nav>\n<\/div>\n<\/div>\n\n\n<\/div>\n\n\n\n
    \n

    \n\u00c0 propos de l\u2019\u00e9tude<\/h2>\n\n\n\n

    La maladie de Parkinson est une affection de longue dur\u00e9e qui n\u00e9cessite une implication active des patients dans la gestion de leur sant\u00e9. Les technologies de sant\u00e9 num\u00e9rique, telles que les dispositifs connect\u00e9s, les applications ou les outils en ligne, peuvent aider les personnes vivantes avec des maladies chroniques \u00e0 – se sentir davantage actrices de leur sant\u00e9, \u00e0 rester inform\u00e9es et \u00e0 am\u00e9liorer leur confiance en soi ainsi que leur autonomie.<\/p>\n\n\n\n

    Cependant, tout le monde ne b\u00e9n\u00e9ficie pas de ces technologies de la m\u00eame mani\u00e8re. Des facteurs personnels, sociaux et environnementaux tels que l’\u00e2ge, la gravit\u00e9 des sympt\u00f4mes, les comp\u00e9tences num\u00e9riques, l’acc\u00e8s aux technologies num\u00e9riques ou le soutien des proches aidants ou des professionnels de sant\u00e9 peuvent influencer l’utilit\u00e9 de ces technologies dans la vie quotidienne.<\/p>\n\n\n\n

    Notre nouvelle \u00e9tude vise \u00e0 mieux comprendre comment les personnes atteintes de la maladie de Parkinson utilisent les technologies num\u00e9riques pour se sentir plus au contr\u00f4le de leur sant\u00e9, ainsi que les facteurs qui facilitent ou freinent ce processus. En nous concentrant sur l’exp\u00e9rience, les attentes et les priorit\u00e9s des personnes atteintes de la maladie de Parkinson nous cherchons \u00e0 comprendre ce qui compte le plus pour elles lorsqu’il s’agit d’utiliser les technologies num\u00e9riques de sant\u00e9 actuelles ou futures pour mieux g\u00e9rer leur sant\u00e9 et de leurs soins.<\/p>\n\n\n\n

    Les t\u00e9moignages et les pr\u00e9f\u00e9rences des participant permettront de rendre ces technologies plus utiles, plus pertinentes et mieux adapt\u00e9es \u00e0 leurs besoins. Ces contributions guideront nos recherches, afin que les solutions d\u00e9velopp\u00e9es refl\u00e8tent ce que les personnes atteintes de la maladie de Parkinson trouvent r\u00e9ellement utile et pratique dans leur vie quotidienne.<\/p>\n\n\n\n

    \nProject team<\/h2>\n\n\n\n
      \n
    • Jochen KLUCKEN<\/strong>, PI<\/li>\n\n\n\n
    • Messaline FOMO FODOM<\/strong>, Project member<\/li>\n\n\n\n
    • Liyousew BORGA<\/strong>, Project member<\/li>\n\n\n\n
    • Gelani<\/strong> ZELIMKHANOV<\/strong>, Project member<\/li>\n\n\n\n
    • Isabel SCHWANINGER<\/strong>, Project member<\/li>\n<\/ul>\n<\/div><\/section>\n<\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":56,"featured_media":1768,"parent":0,"menu_order":0,"template":"","meta":{"featured_image_focal_point":[],"show_featured_caption":false,"ulux_newsletter_groups":"","uluxPostTitle":"DMDEmpower","uluxPrePostTitle":"Research Project","_trash_the_other_posts":false,"_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"rpp_rp_identifier":"1764","rpp_taxonomies_in_sync":true},"research-project-status":[595],"research-project-type":[],"field-of-interest":[280,289],"organisation":[535,525],"authorship":[56],"acf":[],"yoast_head":"\nDMDEmpower : comprendre le r\u00f4le de la sant\u00e9 num\u00e9rique dans l\u2019autonomie des personnes atteintes de la maladie de Parkinson - 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