{"id":1067,"date":"2021-11-26T14:20:20","date_gmt":"2021-11-26T14:20:20","guid":{"rendered":"https:\/\/website.prod.unilu.spikeseed.cloud\/lcsb-en\/news\/parkinsonnet-luxembourg-celebrates-5-years\/"},"modified":"2021-11-26T14:20:20","modified_gmt":"2021-11-26T14:20:20","slug":"parkinsonnet-luxembourg-celebrates-5-years","status":"publish","type":"news","link":"https:\/\/www.uni.lu\/lcsb-en\/news\/parkinsonnet-luxembourg-celebrates-5-years\/","title":{"rendered":"ParkinsonNet Luxembourg celebrates 5 years"},"content":{"rendered":"<section class=\"wp-block-unilux-blocks-free-section section\"><div class=\"container xl:max-w-screen-xl\"><p>ParkinsonNet Luxembourg was established only 5 years ago and began full operations in 2018 with the first multidisciplinary professional training. Modelled after the highly effective Dutch programme founded by Prof. Dr. Bas Bloem from Radboud University Nijmegen, the concept focuses on building an integrated care network for people with Parkinson\u2019s disease (PD) at all stages. Thanks to its close link to international research, it allows its members to benefit, during their continuous training, of the latest findings and use state of the art treatments. The quality of life of people with PD is at the centre of all activities and it continually improves the exchange between the different healthcare professionals.<\/p><p>This anniversary was celebrated on the 19<sup>th<\/sup>\u00a0of November at the Residence of H.E. Mr. Cees Bansema, Ambassador of the Kingdom of the Netherlands. Researchers, health professionals and representatives of the Ministry of Health, Caisse Nationale de la Sant\u00e9 (CNS), Luxembourg National Research Fund (FNR), and research institutions from Luxembourg, as well as people diagnosed with Parkinson\u2019s disease, attended the event. Achievements were shared, status and future developments of <a href=\"https:\/\/www.parkinsonnet.lu\/en\/\" target=\"_blank\" title=\"\" rel=\"noopener\">ParkinsonNet Luxembourg<\/a> were discussed, and the fruitful collaboration between Luxembourg and the Netherlands in the field of Parkinson\u2019s disease was celebrated. Mr. Bansema praised the successful partnership, noting that through the network, the strong bonds between the Netherlands and Luxembourg continue to be reinforced.<\/p>\n<h2 class=\"has-text-align-left wp-block-unilux-blocks-heading\"        id=\"an-integrated-and-multidisciplinary-healthcare-network\"\n    >\nAn integrated and multidisciplinary healthcare network<\/h2>\n<p>ParkinsonNet Luxembourg promotes patient-centred care by training healthcare providers to identify and address the specific Parkinson\u2019s related needs of each patient and by facilitating communication between the different healthcare disciplines around a patient\u2019s individualised treatment.<\/p><p>Research has proven the benefits of ParkinsonNet approach such as the significant lowering of disease-related complications and even the reduction of costs in the Netherlands healthcare system. As the current network perfectly matches with the national effort in establishing \u2018r\u00e9seaux de comp\u00e9tences\u2019 there is a high interest for funding these effective treatments on a national level. Dr. Jean-Claude Schmit, Director of Health Luxembourg, congratulates ParkinsonNet for piloting in the field in Luxembourg and for establishing a mature network. \u201cIt is fulfilling the requirements of the \u2018r\u00e9seau de comp\u00e9tences\u2019. Therefore, the Ministry of Health is ready to support and fund this initiative.\u201d<\/p><p>Christian Oberl\u00e9, president of CNS, who initiated the digitalisation of the health sector is convinced: \u201cThe existing network is a perfect test bed for implementing innovations for digital health.\u201d He sees the CNS as the right partner to support ParkinsonNet in reaching its goals by integrating digital health applications in Luxembourg.<\/p>\n<h2 class=\"has-text-align-left wp-block-unilux-blocks-heading\"        id=\"increasing-the-quality-of-life-of-patients\"\n    >\nIncreasing the quality of life of patients<\/h2>\n<p>Today, ParkinsonNet Luxembourg continually strives to improve the quality of life for people with Parkinson\u2019s. The members are fully committed to continuing medical education as an essential component to best practice for patient support, and crucial to the programme\u2019s success. \u201cIt sets a new standard in integrated care for complex chronic diseases and benefits from the expertise of a multidisciplinary team of healthcare professionals that provides instrumental information for people in the field beyond PD.\u201d explains Prof. Dr. Rejko Kr\u00fcger, initiator of ParkinsonNet Luxembourg.<\/p><p>Mr. Kloos who was diagnosed with Parkinson\u2019s disease in 2021 shared his experiences: \u201cParkinsonNet helped me a lot. After the diagnosis, I got excellent support by the ParkinsonNet healthcare professionals. Thanks to them, I have a much better understanding of the disease and know how to live with Parkinson\u2019s.\u201d Mariella Graziano, physiotherapist trainer for ParkinsonNet Luxembourg, emphasised the importance of training the team of healthcare providers to be well-equipped with skills to help the people with Parkinson\u2019s. \u201cOn top of the excellent scientific training, one of the most important lessons that we learned from our Dutch colleagues is that the patient is the expert of having the disease, and as such, he is a member of his therapeutic team and not a mere receiver of care.\u201d adds Sylvia Herbrink, speech and language therapist trainer for ParkinsonNet Luxembourg.<\/p><figure class=\"wp-block-dev4-reusable-blocks-image  object-fit--contain\">\n    \n<img decoding=\"async\" class=\"wp-block-image unilux-custom-image-block\"\n                alt=\"\"\n            src=\"https:\/\/www.uni.lu\/wp-content\/uploads\/sites\/6\/2023\/07\/parkinsonnet_5years_webpic.jpg\"\n                srcset=\"https:\/\/www.uni.lu\/wp-content\/uploads\/sites\/6\/2023\/07\/parkinsonnet_5years_webpic-300x133.jpg 300w, https:\/\/www.uni.lu\/wp-content\/uploads\/sites\/6\/2023\/07\/parkinsonnet_5years_webpic.jpg 500w\"\n                style=\"object-position: 50.00% 50.00%; font-family: &quot;object-fit: contain; object-position: 50.00% 50.00%;&quot;; aspect-ratio: 21\/9; object-fit: contain; width: 100%;\"\n        loading=\"lazy\"\n\/>    <\/figure>This event took place under the CovidCheck system.\n<h2 class=\"has-text-align-left wp-block-unilux-blocks-heading\"        id=\"an-example-to-follow\"\n    >\nAn example to follow<\/h2>\n<p>The lessons learned during ParkinsonNet Luxembourg\u2019s implementation, will be extrapolated for planning additional integrated care networks for other chronic diseases, such as stroke, multiple sclerosis or and inflammatory bowel disease. \u201cWhen we supported the <a href=\"https:\/\/www.parkinson.lu\" target=\"_blank\" title=\"\" rel=\"noopener\">National Centre for Excellence in Research on Parkinson\u2019s Disease (NCER-PD)<\/a> project eight years ago, we didn\u2019t dream of the rapid impact it would have on the patients and on the society overall.\u201d comments Dr. Marc Schiltz, Secretary General of the FNR. \u201cNCER-PD was the successful pilot for a new series of NCER programmes that FNR will start in the future\u201d.\u00a0<\/p><p>The positive attitude was also shared by Prof. Dr. Bas Bloem, the initiator of ParkinsonNet. Prof. Dr. Bloem concludes \u201cI am very proud of ParkinsonNet Luxembourg, and I am happy to support the network further.&#8221; As a next step, he recommends a scale-up including other neurological diseases. The event participants unanimously agreed that expertise and a passion for patient care are a vital partnership for battling Parkinson\u2019s Disease.<\/p><p>For more information about ParkinsonNet Luxembourg, please visit\u00a0<a href=\"http:\/\/www.parkinsonnet.lu\/\" target=\"_self\" title=\"\" rel=\"noopener\">www.parkinsonnet.lu<\/a><\/p><\/div><\/section>","protected":false},"excerpt":{"rendered":"<p>ParkinsonNet Luxembourg was established only 5 years ago and began full operations in 2018 with the first multidisciplinary professional training. Modelled after the highly effective Dutch programme founded by Prof. Dr. Bas Bloem from Radboud University Nijmegen, the concept focuses on building an integrated care network for people with Parkinson\u2019s disease (PD) at all stages. Thanks to its close link to international research, it allows its members to benefit, during their continuous training, of the latest findings and use state of the art treatments. The quality of life of people with PD is at the centre of all activities and it continually improves the exchange between the different healthcare professionals.<\/p>\n","protected":false},"author":0,"featured_media":1068,"template":"","format":"standard","meta":{"featured_image_focal_point":[],"show_featured_caption":false,"ulux_newsletter_groups":"","uluxPostTitle":"","uluxPrePostTitle":"","_trash_the_other_posts":false,"_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false},"news-category":[],"news-topic":[19],"organisation":[202],"authorship":[],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v22.3 (Yoast SEO v22.3) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>ParkinsonNet Luxembourg celebrates 5 years - LCSB I University of Luxembourg<\/title>\n<meta name=\"description\" content=\"ParkinsonNet Luxembourg was established only 5 years ago and began full operations in 2018 with the first multidisciplinary professional training. 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Modelled after the highly effective Dutch programme founded by Prof. Dr. Bas Bloem from Radboud University Nijmegen, the concept focuses on building an integrated care network for people with Parkinson\u2019s disease (PD) at all stages. Thanks to its close link to international research, it allows its members to benefit, during their continuous training, of the latest findings and use state of the art treatments. 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