{"id":2519,"date":"2024-05-13T10:51:29","date_gmt":"2024-05-13T08:51:29","guid":{"rendered":"https:\/\/www.uni.lu\/fstm-fr\/?post_type=events&p=2519"},"modified":"2024-06-05T11:20:29","modified_gmt":"2024-06-05T09:20:29","slug":"les-soins-palliatifs-pediatriques-en-mouvement-au-luxembourg","status":"publish","type":"events","link":"https:\/\/www.uni.lu\/fstm-fr\/events\/les-soins-palliatifs-pediatriques-en-mouvement-au-luxembourg\/","title":{"rendered":"Les soins palliatifs p\u00e9diatriques en mouvement au Luxembourg"},"content":{"rendered":"\n
\n

L\u2019Universit\u00e9 du Luxembourg en partenariat avec la Direction de la Sant\u00e9, le Minist\u00e8re de la Sant\u00e9, et le Centre Hospitalier de Luxembourg (CHL) organisent une journ\u00e9e d\u2019\u00e9change le 7 juin 2024 autour des soins palliatifs p\u00e9diatriques et des modalit\u00e9s d\u2019impl\u00e9mentation au Grand-Duch\u00e9 du Luxembourg suite aux priorit\u00e9s identifi\u00e9es dans le cadre du plan national 2023-2026 \u00ab Fin de vie et soins palliatifs \u2013 volet p\u00e9diatrique\u00bb.<\/p>\n\n\n\n

\nProgramme<\/h2>\n\n\n\n
  • \n
    \n \n

    \n8h30<\/h4>\n
    \n \n \n <\/span>\n<\/div><\/header>
    \n
    \n \n

    Accueil<\/p>\n<\/div><\/div><\/li>\n\n

  • \n
    \n \n

    \n8h50<\/h4>\n
    \n \n \n <\/span>\n<\/div><\/header>
    \n
    \n \n

    Mot de bienvenue, Prof. Simone Niclou, vice-rectrice \u00e0 la recherche, Universit\u00e9 du Luxembourg<\/em><\/p>\n<\/div><\/div><\/li>\n\n

  • \n
    \n \n

    \n9h00<\/h4>\n
    \n \n \n <\/span>\n<\/div><\/header>
    \n
    \n \n

    Au jour le jour, se battre et esp\u00e9rer,\u00a0 M. Andr\u00e9 Loutsch, p\u00e8re de Tristan<\/em><\/p>\n<\/div><\/div><\/li>\n\n

  • \n
    \n \n

    \n9h15<\/h4>\n
    \n \n \n <\/span>\n<\/div><\/header>
    \n
    \n \n

    Organisation des soins palliatifs p\u00e9diatriques France, Dr. Matthias Schell, oncop\u00e9diatre, coordinateur Equipe ressource r\u00e9gionale de soins palliatifs p\u00e9diatriques et pr\u00e9sident de la Soci\u00e9t\u00e9 fran\u00e7aise de soins palliatifs p\u00e9diatriques, France<\/em><\/p>\n<\/div><\/div><\/li>\n\n

  • \n
    \n \n

    \n9h45<\/h4>\n
    \n \n \n <\/span>\n<\/div><\/header>
    \n
    \n \n

    La liaison p\u00e9diatrique comme mod\u00e8le de soins palliatifs p\u00e9diatriques en Belgique, Prof. Marie Friedel, professeure en sciences infirmi\u00e8res, Universit\u00e9 du Luxembourg<\/em><\/p>\n<\/div><\/div><\/li>\n\n

  • \n
    \n \n

    \n10h15<\/h4>\n
    \n \n \n <\/span>\n<\/div><\/header>
    \n
    \n \n

    Premi\u00e8res donn\u00e9es de l\u2019inventaire du nombre d’enfants avec des besoins en soins palliatifs p\u00e9diatriques au Luxembourg, Mme<\/em> Micha Massaad, doctorante, Universit\u00e9 du Luxembourg<\/em><\/p>\n<\/div><\/div><\/li>\n\n

  • \n
    \n \n

    \n10h40<\/h4>\n
    \n \n \n <\/span>\n<\/div><\/header>
    \n
    \n \n

    Pause sant\u00e9<\/p>\n<\/div><\/div><\/li>\n\n

  • \n
    \n \n

    \n11h00<\/h4>\n
    \n \n \n <\/span>\n<\/div><\/header>
    \n
    \n \n

    Accompagnement des enfants avec des maladies chroniques complexes en soins m\u00e9dicaux de r\u00e9adaptation, Dr. Guy Letellier, p\u00e9diatre et r\u00e9\u00e9ducateur, chef de service du centre de r\u00e9adaptation ESEAN-APF, France<\/em><\/p>\n<\/div><\/div><\/li>\n\n

  • \n
    \n \n

    \n11h30<\/h4>\n
    \n \n \n <\/span>\n<\/div><\/header>
    \n
    \n \n

    La fin de vie en n\u00e9onatologie \u00e0 la Kannerklinik-CHL, Dr. Charlotte Pierron, chef de service de la n\u00e9onatologie, CHL<\/em><\/p>\n<\/div><\/div><\/li>\n\n

  • \n
    \n \n

    \n12h00<\/h4>\n
    \n \n \n <\/span>\n<\/div><\/header>
    \n
    \n \n

    La maman invisible aux 1000 facettes, Dr. Galena Wallers, docteure en biomath\u00e9matiques, m\u00e8re de Chris<\/p>\n<\/div><\/div><\/li>\n\n

  • \n
    \n \n

    \n12h30<\/h4>\n
    \n \n \n <\/span>\n<\/div><\/header>
    \n
    \n \n

    Vivre avec la maladie de Duchenne, Mr Ajlan Zvrko<\/p>\n<\/div><\/div><\/li>\n\n

  • \n
    \n \n

    \n12h40<\/h4>\n
    \n \n \n <\/span>\n<\/div><\/header>
    \n
    \n \n

    Exemple d\u2019accompagnement \u00e0 domicile d\u2019un enfant avec des besoins en soins palliatifs, Selma Bouarioua, infirmi\u00e8re p\u00e9diatrique, St\u00ebftung H\u00ebllef Doheem<\/em><\/p>\n<\/div><\/div><\/li>\n\n

  • \n
    \n \n

    \n13h00<\/h4>\n
    \n \n \n <\/span>\n<\/div><\/header>
    \n
    \n \n

    Lunch<\/p>\n<\/div><\/div><\/li>\n\n

  • \n
    \n \n

    \n13h45<\/h4>\n
    \n \n \n <\/span>\n<\/div><\/header>
    \n
    \n \n

    Table ronde \u00ab\u00a0D\u00e9fis et enjeux de l’impl\u00e9mentation d’une offre de soins palliatifs p\u00e9diatriques et de soins de r\u00e9pit p\u00e9diatrique au Luxembourg\u00a0\u00bb <\/p>\n\n

    Avec la participation de :<\/p>\n\n

      \n
    • Mme<\/em> Gwena\u00eblle Crohin (chef du service psycho-social, ALAN Maladies rares, Luxembourg)<\/em><\/li>\n\n\n\n
    • Mme<\/em> Patricia Ferrante (vice-Pr\u00e9sidente, asbl enVie)<\/em><\/li>\n\n\n\n
    • Dr Isabelle Kieffer (m\u00e9decin sp\u00e9cialiste dans le Service National d\u2019Onco-H\u00e9matologie P\u00e9diatrique (SNOHP) et en Pediatrie Generale, CHL)<\/em><\/li>\n\n\n\n
    • Dr Guy Letellier (chef de service du centre de r\u00e9adaptation<\/em><\/em><\/em>, ESEAN-APF)<\/em><\/li>\n\n\n\n
    • M. Andr\u00e9 Loutsch (p\u00e8re de Tristan)<\/em><\/li>\n\n\n\n
    • Mme St\u00e9phanie Rosquin (secr\u00e9taire, asbl Pour une parenth\u00e8se)<\/em><\/li>\n\n\n\n
    • Dr Matthias Schell (pr\u00e9sident<\/em><\/em>, Soci\u00e9t\u00e9 fran\u00e7aise de soins palliatifs p\u00e9diatriques)<\/em><\/li>\n\n\n\n
    • Dr Galena Wallers<\/em> (PhD en Biomath\u00e9matiques, m\u00e8re de Chris)<\/em><\/li>\n\n\n\n
    • Dr Murielle WEYDERT<\/em> (m\u00e9decin dirigeant \u2013 Direction de la sant\u00e9, Division de la m\u00e9decine curative et de la qualit\u00e9 en sant\u00e9<\/em>, Minist\u00e8re de la Sant\u00e9)<\/li>\n\n\n\n
    • M. Ajlan Zvrko (expert du v\u00e9cu)<\/em><\/li>\n\n\n\n
    • Mod\u00e9ratrice: Prof. Marie Friedel (Universit\u00e9 du Luxembourg)<\/em><\/li>\n<\/ul>\n<\/div><\/div><\/li>\n\n
    • \n
      \n \n

      \n15h30<\/h4>\n
      \n \n \n <\/span>\n<\/div><\/header>
      \n
      \n \n

      Tranquil Melodies par le groupe TSP, Dr. Jyoshma Dsouza (vocaliste, chercheuse postdoctorale, Universit\u00e9 du Luxembourg) et M. Micha Novikov (guitariste)<\/p>\n<\/div><\/div><\/li>\n\n

    • \n
      \n \n

      \n15h50<\/h4>\n
      \n \n \n <\/span>\n<\/div><\/header>
      \n
      \n \n

      Cl\u00f4ture<\/p>\n<\/div><\/div><\/li><\/ul>\n\n\n

      <\/div>\n\n\n

      \nInscriptions<\/h3>\n\n\n\n

      La participation est gratuite mais l’inscription est requise.<\/p>\n\n\n\n

      • \n S’inscrire<\/a>\n<\/li>\n<\/ul>\n<\/div><\/section>\n\n\n
        \n
        \n \n

        \n<\/h2>\n\n
          \n
        • \n \n \n \n Department of Life Sciences and Medicine <\/span>\n <\/use><\/svg> <\/span>\n <\/a>\n<\/li>\n<\/ul>\n <\/div>\n<\/section>","protected":false},"excerpt":{"rendered":"

          L\u2019Universit\u00e9 du Luxembourg en partenariat avec la Direction de la Sant\u00e9, le Minist\u00e8re de la Sant\u00e9, et le Centre Hospitalier de Luxembourg organisent une journ\u00e9e d\u2019\u00e9change le 7 juin 2024 autour des soins plalliatifs p\u00e9diatriques et des modalit\u00e9s d\u2019impl\u00e9mentation au Grand-Duch\u00e9 du Luxembourg suite aux priorit\u00e9s identifi\u00e9es dans le cadre du plan national 2023-2026 \u00ab\u00a0Fin de vie et soins palliatifs\u00a0\u2013 volet p\u00e9diatrique\u00bb.<\/p>\n","protected":false},"author":44,"featured_media":2520,"parent":0,"menu_order":0,"comment_status":"open","ping_status":"closed","template":"","format":"standard","meta":{"featured_image_focal_point":[],"show_featured_caption":false,"ulux_newsletter_groups":"","uluxPostTitle":"","uluxPrePostTitle":"","_trash_the_other_posts":false,"_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_tribe_ticket_capacity":"0","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"event_start_date":"2024-06-07 09:00:00","event_end_date":"2024-06-07 15:30:00","event_speaker_name":"","event_speaker_link":"","event_is_online":false,"event_location":"Campus de Belval, salle 3.520","event_street":"2, place de l'Universit\u00e9","event_location_link":"https:\/\/www.uni.lu\/fr\/a-propos\/campus\/campus-belval\/","event_zip_code":"4365","event_city":"Esch-sur-Alzette","event_country":"Luxembourg"},"events-topic":[308],"events-type":[319,324,325],"organisation":[95,24],"authorship":[44],"acf":[],"yoast_head":"\nLes soins palliatifs p\u00e9diatriques en mouvement au Luxembourg - 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